Associate Director, Patient Advocacy & Engagement (Eastern United States)

1. Strategic Leadership and Collaboration: Develop and execute the US patient advocacy strategy for the rare and pipeline portfolio, ensuring alignment with the medical and clinical program strategy. Partner with internal stakeholders, including Medical Affairs, Commercial, Market Access, and Public Affairs teams, to ensure a unified approach to patient advocacy efforts. Develop strategic collaborations between internal and external stakeholders in line with mutual goals to enhance care for patients. Enable patient input and engagement into regulatory and market access submissions. Lead the implementation of advocacy programs that are culturally and regionally appropriate, ensuring a positive impact at the national and local levels. Support Alnylam's patient-focused culture collaborating closely with legal, compliance, and data privacy colleagues to ensure strict adherence to local codes and company policies. Provide support as needed with international patient advocacy groups. Develop initiatives to enhance disease awareness and improve time to diagnosis, as well as educate the patient community so that they are empowered to actively engage with their healthcare provider in the management of their disease. Work closely with Commercial teams to ensure patient-centricity is integrated into brand and market access strategies. Collaborate with the Public Affairs and Communication teams to align advocacy initiatives with policy and communication strategies. Provides support for other programs as required. Ensure all patient advocacy activities comply with regulatory, legal, and ethical standards. Education: Advanced degree in life sciences, public health, or a related field preferred (PhD, PharmD, MD, or MBA a plus). Ability to travel approximately 30% of the time. Solid experience in biotech and pharmaceutical industry. Experience leading high-impact patient engagement programs at the national or regional level. Exceptional relationship-building skills with the ability to influence and collaborate across internal and external stakeholders. Strong understanding of the patient advocacy landscape, particularly in rare diseases. Strategic mindset with the ability to translate complex strategies into actionable plans. Proven ability to manage budgets and thrive within compliance operations frame works. Excellent communication, presentation, and organizational skills. Passionate advocate for patients and caregivers, demonstrating empathy and a commitment to improving the patient experience. Ability to thrive in a fast-paced, network operating or matrix environment; able to prioritize high-impact projects; works with a sense of purpose and able to roll up their sleeves and execute.