The Home Visitation Coordinator at The Arc of Madison County supports the Behavioral Education Support (BSE) Program at improving outcomes, services, and quality of life for individuals with autism spectrum disorder (ASD) and related developmental disabilities. This role coordinates intake, referrals research activities within home visitation, ensures ethical and regulatory compliance, and works closely with individuals with disabilities, families, clinicians, and research partners. The ideal candidate is organized, compassionate, and committed to The Arc’s mission of inclusion, advocacy, and support.
Essential Duties and Responsibilities
Research Coordination & Compliance
Coordinate day-to-day operations of the home visitation program and autism-related research studies conducted within the BSE Program.
Prepare and maintain intake documents, regulatory documents, consent/assent forms, study logs, and research records
Assist with protocol development, amendments, continuing reviews, and reporting
Family Engagement
Support recruitment, intake, enrollment, and retention of individuals with ASD and related disabilities their families through the home visitation program.
Conduct informed consent and assent procedures using accessible, family-centered communication
Serve as a consistent point of contact for participants, caregivers, and community partners
Coordinate scheduling of research visits, assessments, and follow-ups
Data Collection & Management
Collect, enter, and maintain accurate data in approved data management systems
Administer or assist with standardized assessments, interviews, and questionnaires as trained
Monitor data quality, confidentiality, and secure storage of sensitive information
Assist with data cleaning and preparation for analysis and reporting
Collaboration & Program Integration
Collaborate with Autism Clinic clinicians, therapists, program staff, and external research partners
Integrate research activities into clinical and programmatic workflows while minimizing participant burden
Participate in team meetings, case discussions, and planning sessions
Communicate study progress and outcomes to internal stakeholders
Training & Quality Improvement
Assist with training and supervision of students, interns, or research assistants as needed
Support audits, monitoring visits, and continuous quality improvement efforts
Stay current on best practices in autism research, ethics, and disability-affirming approaches
Required Qualifications
Bachelor’s degree in psychology, social work, public health, education, neuroscience, or a related field
Knowledge of research ethics, informed consent, and data confidentiality
Strong organizational, interpersonal, and communication skills
Demonstrated experience working with individuals with autism and/or developmental disabilities
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