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Patient Education Liaison - Rare Disease (Southeast Region)

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Job Description - Patient Education Liaison - Rare Disease (Southeast Region)

Actively collaborates with Field Sales, Patient Services, Medical Affairs, Marketing, Advocacy and other critical internal teams to increase disease-state awareness and early diagnosis Leads regional effort to provide disease-state education, treatment education and support to patients their families/caregivers, nurses, medical assistants, office staff, nursing organizations, and community groups Maintains disease-state and product expertise through continuing medical education and attendance at relevant symposia, conferences and other educational opportunities Provides comprehensive updates on activity to regional colleagues, ensuring that the regional team appropriately works as one entity to support patients in early diagnosis and access to treatment Offers constructive feedback on existing workplan and proposes innovative service offerings to leadership where opportunities exist Accountable for executing on targeted workplan Completes required work in CRM system to facilitate tracking of critical launch metrics Ensures compliance with all corporate and industry policies per training provided by Alnylam Commercial, Legal, Regulatory and Compliance Officers Bachelor of Science in Nursing, Registered Nurse Genetic rare disease/ultra-rare disease experience 5+ yrs. Pharmaceutical/biotech experience in a similar role Experience supporting and providing education to patients, family members, nurses, medical assistants, office staff, nursing organizations, and community groups affected by rare and ultra-rare genetic diseases (required) Strong presentation skills Exceptional interpersonal skills, professional communications, problem-solving, compassion and the ability to navigate difficult conversations Ability to translate scientific/medical information into patient-friendly language Ability to work well and lead within cross-functional groups and in a matrix organization Desire to innovate and work in a fast-paced, energetic environment
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